When Brielle Burr turned 6 months old, her parents, Ryan and Candace Burr of Taylorsville, Utah, threw her a party because everyone told them that their daughter would never live to celebrate her first birthday.
Born with Beare Stevenson syndrome, a rare disorder that causes premature fusing of the skull, blockage of the nasal passages, brain growth issues and a furrowed appearance, Brielle would be lucky to live several months, let alone a year, doctors told the Burrs in 2013, when she was only 1 day old.
Four years later, now that Brielle recently celebrated turning 4, “we hope to continue beating the odds,...
Born with Beare Stevenson syndrome, a rare disorder that causes premature fusing of the skull, blockage of the nasal passages, brain growth issues and a furrowed appearance, Brielle would be lucky to live several months, let alone a year, doctors told the Burrs in 2013, when she was only 1 day old.
Four years later, now that Brielle recently celebrated turning 4, “we hope to continue beating the odds,...
- 8/8/2017
- by Cathy Free
- PEOPLE.com
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